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My Tiny little space heater

11:05:00 PM Posted In , , , , Edit This 0 Comments »
I'm laying on the couch watching cheesy reality television with my Tiny little space heater on my chest. This child puts out more heat than most furnaces! Seriously. So it occurred to me tonight that I posted we were going home and then I just jumped into picture mode (because it's the easiest way for me to post anymore). So now that I've made good on my promise of pictures it's time for me to update on Emmett John.

First, allow me to take a moment to thank those of you who have been praying for my Tiny. He needs all the help he can get at this point. With that said, Emmett John is actually doing really well.

The Respiratory Therapist came to the hospital at about 5:30pm yesterday. She took about a half an hour to teach Rob and I how to use the Home Apnea Monitor. Once we learned about all the different lights and alarms I nursed Emmett John and we were released at around 6:30 pm.

On our way home we stopped at the grocery store to pick up a few things. We had Emmett hooked up but opted to leave the monitor in the car since we would be with him. So of course, in keeping with the crappy luck this is our lives, he had an episode in the store but since he wasn't hooked up the monitor didn't record it. *sigh*

He's been hooked up from then on. We made it all night last night without any episodes and only one alarm because his leads came loose. (For a baby that doesn't sweat, these leads are sure sneaky and migrate really easily.) When we woke up I was freaked out at first because I had remembered the episodes but momentarily forgotten about the monitor so it scared me that he slept so well last night.

He made it most of the day without any issues too. Then this afternoon he was in his swing while I was updating some things on the blog. I heard him cough so I stopped and listened. Then I heard him cough again followed by gagging and choking. I can honestly say I haven't moved so fast in a very long time. I don't know how long the episode lasted. I know it was less than 20 seconds because the alarm didn't sound. I don't know if it was less than 16 seconds, which is the amount of time needed to trip the monitor to record. As horrible as I'm sure this sounds, I can only hope that the episode lasted at least 16 seconds so that Dr. H can see it and maybe find some answers. He sees Dr. H on Wednesday for his 2 month appointment so hopefully we'll know more then.

Other than that, he's had a pretty good day. As I write this, he's laying next to me on the couch trying to decide if he wants to smile and talk to me or fuss. Oops...sounds like he's chosen fuss. Gotta go.

What is an apnea monitor?

12:45:00 AM Posted In , , , , Edit This 1 Comment »

These are pictures of Emmett John with his Apnea Monitor. Luckily, it's small enough that it's portable and easy to take every where he goes. I was worried that the pack part would be big and bulky like the Wallaby blanket box was.

We have our choice of two ways to use the monitor. We can keep it on him only when we have to leave him alone (ie in the swing, bouncy seat or while he sleeps). Or we can leave it on him all the time. Right now, I'm opting to leave it on all the time because I want to be sure that we catch whatever is going on. That way they can hopefully figure it out difinitively. Rather than stating what they "think it might be". As it is, we stopped at the grocery store yesterday on our way home from the hospital and decided to not use it since we would be with him. And of course, it happened while we were in the store. *sigh* So now he wears it all the time - except for bath time because that would be bad.

Mr. Emmett John and his monitor. The white one is on the right (white on right) and keeps track of his respirations. If he stops breathing for 16 seconds the monitor begins to record the episode. If he still isn't breathing after 20 seconds the alarm sounds. Believe me when I say that you can't miss this alarm. It hurts your ears and your head too for that matter. The black one is on the left (smoke over fire) and keeps track of his heartrate. If his heartrate drops below 80bpm or spikes above 220bpm the alarm will sound.

Emmett John checking out his new attachment. ;)

All dressed...can you find the wires? (Hint: They are not in his diaper. Wet diaper + electricity = super bad idea. And yes, the respiratory therapist said she tells everyone and she's had people actually question why it's a bad idea.)

Smiling Mr. Emmett John - he really doesn't seem to mind the wires too much. Although he is less than thrilled with the noise it makes. lol

Ah...true love...

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