My Breastfeeding Badges of Honor

Speaking the Language of Mr. Emmett John ~ Round 2

5:11:00 PM Posted In , , , , , , , , , , Edit This 1 Comment »

I don't know where to begin.

Yesterday I took Mr. Emmett John for his 18 month well-baby check-up with Dr. H. Tomorrow I will take him to the Audiologist to have his hearing tested. Physically, he's doing well. He isn't sick. Motor skills are right on track. He's still channeling Jack-Jack, which is absolutely exhausting. I honestly don't know how he does it. One minute he's right next to you then he's gone and there are 6 of him everywhere! On the bright side, his constant movement doesn't seem to be having any effect on his growth...

The Stats

Head Circ: 48.8cm (75%)

Length: 35.25in (98%)
Weight: 26lb 1oz (41%)

I spoke with Dr. H about my growing concerns about Emmett John's lack of language. He doesn't talk, period. He babbles, which basically means he makes the noises that don't pertain to anything. For Emmett John, MaMa doesn't hold any signifigance for him towards me. Neither does DaDa, BaBa or any of the rest of them. He just says them.

He doesn't seem to hear us either. Our house is set up in a circle - front room (living room), hallway, kitchen, dinning room - all in a circle. The other night Emmett John was sitting on the couch in the front room and I snuck around so I was about 2 feet behind him then I clapped. I clapped so hard my hands instantly turned red and I moved Emmett John's hair. He didn't even move. He didn't startle, flinch or anything else. We call out to him from across the room and he doesn't respond. Loud noises, quiet doesn't matter because he doesn't seem to hear any of them. The only ones that he sometimes seems to hear are high pitched cell phones.

I mentioned his complete lack of a startle reflex to Dr. H when Emmett John was about 5 months old. At the time though, he had so many other things going on that we needed to figure out that it was lost in the shuffle. Plus his hearing test at the hospital when he was born so Dr. H felt that the "wait and see" approach was probably best. I allowed myself to be poo-pooed into silence and ignored my mother's instinct. Here we are 13 months later.

Tomorrow we are going to the Audiologist for his first hearing test, the OAE. It's the regular hearing test to see if he can hear at all. After that Dr. H has referred him to the local children's hospital for the sedation hearing test, the ABR. He is also referring us to Help Me Grow for early intervention. Help Me Grow will help us to get started with Speech Therapy, Sign Language classes so that we can communicate until we find out what is going on and even there after. He's also referring us to Gavin's Developmental Neurologist so that he can be evaluated for Autism.

Dr. H said that Autism is on the bottom of his possibilities list; however, with the family history via Gavin and the significant speech delay he wants to be sure that all of the bases are covered. That way if he does happen to be Autistic we have early intervention in place, whereas Gavin was unable to benefit from those services. I agree with Dr. H, I don't think that he's Autistic. I think he's deaf. However, I will feel better knowing. Especially if the hearing tests come out a-okay.

I'm not going to lie here guys, I'm terrified for my baby.



info said...

Dr. Alfred Tomatis, a French otolaryngologist, is recognised as the modern day originator of sound or music therapy. In the early 1950's he developed an effective therapy method using altered music to treat conditions such as auditory processing disorder, dyslexia, attention deficit disorder and autism. Another French doctor, Dr. Guy Bérard, developed a similar method, Auditory Integration Training (AIT), which has found many followers in the USA. From personal experience I know that many clients report improvements in understanding, speech, balance, behaviour and emotional well-being after just two or three weeks of daily sound therapy.

Sensory Activation Solutions (SAS) is an organisation with Centres in the U.K. and Turkey that provides a unique service for children and adults that face learning or developmental difficulties. When the established educational, psychological or medical services fail to provide adequate support, the SAS methodology often can provide practical solutions that result in noticeable improvements in daily life.

You may be interested to check out their Free Sound Therapy Home Programme. Their Auditory Activation Method builds on the pioneering work of Dr. Tomatis and Dr. Bérard and has been specifically developed with the aim to improve sensory processing, interhemispheric integration and cognitive functioning. It has helped many children and adults with a wide range of difficulties, ranging from dyslexia and attention deficit/hyperactivity disorder to sensory processing disorders and autism. It is not a cure or medical intervention, but a structured training programme that can help alleviate some of the debilitating effects that these conditions can have on speech and physical ability, daily behaviour, emotional well-being and educational or work performance.

There is no catch, it's absolutely free and most importantly often effective. Check it out at:

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