We got a room
4:29:00 PM Edit This 1 Comment »
Rob
Bed Rest ~ Day 27
6:44:00 PM Posted In 24 weeks , Bed Rest , Life , Pregnancy Edit This 5 Comments »27 down ~ 108 to go
Generosity
4:03:00 PM Posted In 24 weeks , Announcement , Bed Rest , Life , Special People Edit This 1 Comment »I am posting this so that you know, I am very grateful and in the process of making thank you cards for each and every one of you.
I've seen some people leave truly ugly comments on other blogs because gifts were shared with everyone. And I don't want anyone to feel that I'm asking for more. I'm grateful for everything I've received. :)
So please know, that I am very grateful and I feel very blessed to have each and every one of you involved in our lives.
Thanks! :)
***Side note: this blog/post has been changed from it's original form. Originally I asked for opinions as to whether or not it is tacky for me to post pictures of my care packages/gifts. The only comment this post received was in response to that blog. Not the one you find above. I have closed comments to this post because I am not looking to start a war here. :) That is all.***
A Tribute To My Wife........
2:19:00 PM Posted In 2 years , Daddy/Rob , Elliott Richard , Gavin , Life , Parenting , Pictures , Pregnancy , Ultrasound Edit This 1 Comment »
Speechless...
12:31:00 PM Posted In 24 weeks , Bed Rest , Cheesecake , Family/Friends , Life , Special People Edit This 4 Comments »Then, in that special way she seems to have, I receive mail from April. I'm sitting here crying because she wrote me a beautiful letter (it's okay that you typed it - I love it just the same!), two magazines and a beautiful handmade blanket. (Pictures are coming!)
April, thank you! Thank you for somehow knowing just what to say and do. Thank you for being you.
I'm just so touched by the support I'm receiving from everyone. The care packages, the cheesecakes, the handmade gifts...it's all so wonderful. I can't wait to tell Tiny how much love and support we received during this difficult pregnancy. I'm so excited that Gavin and Elliott Richard are able to see the unconditional love and support of friends. So few people are able to witness these things these days. And the fact that my sons get to see it on a regular basis...it's one of the best lessons they'll ever learn. Thank you for helping me to make that lesson available to them. Thank you for each and every thing you've done for us. Your prayers. Your positive thoughts. Your emails and comments. I cherish each and every one of them.
From the bottom of my heart, to each and every one of you, thank you.
Bed Rest ~ Day 26 Welcome to the Dumping Ground
10:54:00 AM Posted In Bed Rest , Cheesecake , Pregnancy Edit This 0 Comments »Bed Rest
Bed rest is starting to get to me. The shots are getting to me in a major way. I know they are getting to Rob but I need him to do that for me. I don't think I could handle it if I had to give them to myself. I can't describe the emotions I feel at 8:00am and 8:00pm everyday. It's exhausting emotionally and physically. It's draining. I just want to run and hide and scream "no no no". I'm tired of being strong. I'm tired of doing what's right. I want to do what's easy for once. I won't, I know I won't because it's not what's best for Tiny. But it would feel so nice. To get up and get dressed and drive to Wal*Mart, by myself. To wander the store and not worry about contractions or pressure or over-doing-it. To just have some time to myself without being in bed or taking a nap. The side effects of the medications are getting to me. The Procardia helps to hold off the preterm labor but it also gives me horrible migraines. The Darvocet helps with the migraines but it makes me loopy and sleepy. Rob is a huge help but then I feel like I'm not doing enough. I'm not pulling my fair share. There's just so much that I feel I should be doing, could be doing and I'm not. I'm dropping the ball.
I feel like even in taking care of Tiny, I'm dropping the ball. I'm staying down. I'm eating right. (Except for the cheesecake but like Nikky pointed out to me last night, it's not like I'm going to be living on cheesecake for the rest of the pregnancy.) I'm drinking more water than I'd care to. I try and lay on my left side. I count the contractions. I try and figure out "was that a contraction?" or "is that something I should worry about". I do everything I'm supposed to do. I keep my appointments. I have the tests run. I take my medications. I endure the injections. I'm doing everything I can do and it still feels like it isn't enough.
This is a public service announcement...
2:01:00 PM Posted In 24 weeks , Announcement , Bed Rest , Cheesecake , Pregnancy , Stressed/Exhausted Edit This 6 Comments »If you email me and I don't email you back one of a few things happened...
*either I didn't get the email.If you call me and I don't call you back one of a few things happened...
*I didn't feel I had anything intelligent to say in response. (That's not me saying your email wasn't intelligent. That's me saying I couldn't come up with a response that didn't sound completely lame so I just didn't respond.)
*I'm just not in the mood to respond right now.
*I forgot to call you back. (Sorry, it happens. I'm only human.)If you have called, emailed or otherwise sent me smoke signals and I haven't not responded...
*I'm just not in the mood to call anyone right now.
*It is not personal.If you send me a care package, watch my children, make/bring me food or otherwise do some random act of kindness for me...please know that...
*I'm not trying to hurt your feelings.
*I'm not avoiding you personally.
*Odds are I'm avoiding life in general and that just so happens to include you..."life in general" is a rather broad scope afterall.
If you are eyeing my cheesecake...*I appreciate each and everything that has been done for me.
*I'm trying to send thank you cards but I prefer to make them myself and that takes more energy than I have at the moment.
*I don't expect you to do anything for me, however, I'm very grateful that you have.
Hopefully this public service announcement will help to clear up any misconceptions out there.*I assure you that the calories are good for Tiny and myself. (The more I eat the more Tiny gains and a fat Tiny is a healthier Tiny should a premature birth take place.)
*I can also assure you that I am doing my best to balance the cheesecake with healthy foods like fruit and veggies.
*Unless you are my mommy, go eye someone else's Junior's cheesecake. :P
Goodies, goodies everywhere!
10:18:00 AM Posted In 24 weeks , Bed Rest , Fun , Pregnancy , Special People Edit This 2 Comments »I received another care package from my Due Date Buddy Merrilee. (I have a few due date buddies for those who are confused by frequent referral to them all. :) lol)
Here's the first bunch of goodies: strawberry sour punch straws, a pretty green bag filled with different chocolates, Nicholas Sparks - "A Bend in the Road", and the white rectangle is a battery powered fire engine toothbrush. Elliott Richard was very happy to take the toothbrush off my hands. lol Now he's obsessed with brushing his teeth! If we let him, he would allow us to brush them all day long. lol
We've got the books (I need to go take a better inventory.) which includes Lipstick Jungle, Trading Up, With This Ring and a few others I can't read/don't remember at the moment (Sorry.). In front we've got the candy - Reisens, the Sour Punch Straws, a Hershey's Cookies and Cream candybar and my little bag of chocolates. (You guys should have seen the look on Rob's face when he saw the Reisens! lol) You can also see Elliott's prized toothbrush next to the strawberry sour punch straws. :) Next to the toothbrush are some perfume samples. :)
Thank you, Merrilee!
Are they precious?
10:15:00 AM Posted In 2 years , Daddy/Rob , Elliott Richard Edit This 0 Comments »24 weeks
9:51:00 AM Posted In 2 years , 24 weeks , Bed Rest , Cheesecake , Elliott Richard , Gavin , Pregnancy Edit This 0 Comments »What Tiny is busy doing this week: This is another big week for your magical growing baby! Just take a look at the checklist for this week: 1) ears: done; 2) fingernails: done; 3) (if you have a boy) testicles: taking their 3-4 day trip from the abdominal wall to the scrotum; and 4) lungs walls: secreting “surfactant”. What’s that? Well, surfactant is sort of what it sounds like: a surface-activated fat whose main purpose is to assist the your baby's little lungs during inflation (as in, filling with air, not getting more expensive). Just in case you’re curious, your submerged baby is still breathing in amniotic fluid, preparing and rehearsing the lungs an oxygen-filled life outside the womb. By the end of this week, your child will be weighing around 2 lbs and 14 inches long. Your cutie-patootie may even be a little more plump, but isn't anywhere near their full baby-fatted cute-self. Most of the “filling out” is coming up in that long awaited (and slightly dreaded?) third trimester. Woo-hoo! Get ready!
Well aside from the usual daytime hobbies of kicking mom, sucking thumbs, kicking mom some more and napping. lol We're almost in the third trimester now...Now we just bake, bake, bake and pack on the pounds. That's why the cheesecake (that my mother so graciously keep trying to save me from) is so important. It keeps me happy, sure. But it will also help me to pack on some pounds to Tiny. The bigger Tiny is at birth the best chances Tiny has at life outside of the "kiddie pool". It shouldn't be too difficult to get Tiny to pack on the pounds. Gavin weighed 8 lb 15 oz at birth - 4 days overdue. Elliott Richard weighed 7 lb 8 oz at birth - 4 weeks early. So I only make big babies. Hopefully this will hold true for Tiny as well.
I'm having a lot of contractions and cramping today. So I'm going to go watch some "mommy TV" and count the contractions to see if I should be calling Dr. D or not. Luckily Elliott Richard loves the baby shows I record because I can only take so many Noggin shows before I start to feel my sanity quickly draining away. lol
Bed Rest ~ Day 25
9:01:00 AM Posted In 24 weeks , Bed Rest , Cheesecake , Pregnancy Edit This 1 Comment »Rob let me sleep in for a little bit again today. Then I had two pieces of cherry crumb cheesecake for breakfast. That's right, I said 2 pieces! :) At this rate, Tiny is going to be huge by the time it's all said and done. lol
Now I'm just hanging out. Watching television. Getting ready to work on pregnancy journals and whatnot. Which is so much easier now that I have my lap desk. It also makes life with my incredibly hot laptop much easier.
I'm just in a grumpy mood today. Something just feels...off and funky. I hate days like this. I can't very well call Dr. D and say, "Hey, guys. I'm contracting but no more than usual but I just feel funky and off." There's nothing that can be done about funky and off. *sigh* I think today is just going to be one of those grumpy, hormonal, pregnant kind of days.
25 down ~ 110 to go
Bed Rest ~ Day 24
4:49:00 PM Posted In 24 weeks , Bed Rest , Demagogues , Gavin , Life , Pregnancy Edit This 3 Comments »I've got a horrible, raging migraine. One of those migraines that cause your eyes to water and blur. It sucks.
Elliott Richard is in a "terrible two's" mood today. Everything is "no", "I don't know", "why" etc. It's a good thing he's so cute or I'd be calling the nearest group of gypsies to come and pick him up! lol
Gavin is doing well. He's hanging out at Grandma and Grandpa G's until Grandma W comes to pick him up sometime in the next hour. He's huge into writing letters right now. Problem is that he keeps writing letters to my ex-husband (Gavin's biological father) asking why they don't want to see him anymore and why they won't do their homework. (When Gavin asked why Nick and Pam (Nick's mom) stopped coming we told him that they had homework that needed to be finished before they could see him again. The "homework" being the paperwork that needed filled out at the visitation location.) We tried to explain to him that we don't know where he lives, because we don't. He was upset at first. Then we explained that he could write letters to me and I would write him back and mail them to Grandma G's and Grandma W's for him. Now all is right with the world again. *sigh*
I don't know if it's the migraine, my migraine meds or just "mommy brain" but my memory is completely shot today. I am trying to fill in my new pregnancy journal but I keep screwing up the dates. This journal is going to end up equal parts ink and white out. *sigh*
Then to add salt to the wounds of the day, I've been contracting pretty regularly today. Nothing timable but they are definitely stirred up over something. *sigh* I think I'll go and try and figure out some dinner now. (Is it wrong that Elliott is eating cold mac & cheese? It was hot but he wasn't interested in it then. It just seems wrong that he's eating cold. I don't know why.)
24 down ~ 111 to go
A morning FULL of deliciousness!!!!
8:20:00 AM Posted In 2 years , 24 weeks , Bed Rest , Cheesecake , Elliott Richard , Pregnancy Edit This 3 Comments »It is 8:21am here. This has been my morning full of deliciousness...
Elliott Richard slept through the night! This does not happen very often but when it does my body, mind and soul are very grateful.
Rob got up with Elliott Richard and allowed me an extra hour of sleep.
I checked Nate's blog to find that while I was sleeping through the night for the first time in ages, Tricia's surgery was a complete success and she is currently in recovery with her new lease on life!
I was able to start my morning with a slice of chocolate ganache Junior's cheesecake. Absolutely heavenly. Even Elliott Richard is par-taking in the deliciousness.
So now, tell me those aren't the makings of a delicious morning. :)
I'd just like to say...
10:11:00 PM Posted In 24 weeks , Bed Rest , Cheesecake , Fun , Pregnancy Edit This 4 Comments »Oh.my.gosh!
I did in fact have it for dinner and I'm thinking of having another small piece for a snack.
Yum. Yum. Yummy!
Kick those prayers into hyper drive!!!!
6:25:00 PM Posted In Announcement , God/Prayer , Special People Edit This 2 Comments »Bed Rest ~ Day 23
5:07:00 PM Posted In 24 weeks , Bed Rest , Cheesecake , Fun , Pictures , Pregnancy , Special People Edit This 5 Comments »So I drug myself out of bed. Came downstairs with Elliott Richard and got him breakfast. Then I just sort of zoned for a while. Rob woke up. And he gave me my morning Heparin injection. (Fun. Fun.) We all hung out for a little while before we got ready to take Elliott to Grandma G's. She was kind enough to watch him while Rob took me for my second Celestone injection. We dropped Elliott off and hung out for a bit.
Then we made our way to Dr. D's office at about 10:30am. I received my injection. And while the injection itself didn't hurt nearly as bad as yesterday's...it hurt worse afterwards because it was the same side as my 17P injection this week. My poor butt is a mess of band aids at this point. lol The nurse felt so bad when she saw them all. (I left them on so that she would know where my other two injections had gone. That way we could avoid any double pokes.)
We left Dr. D's office. I cried some more. (It hurt!) And Rob surprised me with Taco Bell for lunch because he said I had earned it. Then we hung out at Mom G's for a little while before packing up Elliott and heading home.
Now imagine my surprise and confusion when I return home to find an orange and white box (not this box but similar) on my front porch.
Now imagine my shock and elation when I read the box and saw it was from none other than Junior's Most Fabulous Cheesecake!!!!! Yeah baby!
Now allow me to insert some back story here...I love the Food Network. One of my favorite shows is "Throwdown with Bobby Flay". (I *heart* Bobby Flay! Even more since I found out he's married to one of my favorite actresses from Law & Order: SVU!) For those of you who don't know, Throwdown is where Bobby takes on a "master" in making their signature dish. In this episode, it was Bobby vs. the owner of Junior's. (Apparently, Junior's is known for having the best cheesecake in NYC.) So I innocently (I swear, I meant nothing by it!) sent a text message to my best friend, Laura, who happens to work in NYC. (I do this every time there's a Throwdown with an NYC based food because I want to know if she's had it and if it's really *that* good.) She said that it was in fact that good. I told Rob that some day I want to visit NYC to see Laura and try all these foods I see on Food Network. Never in my wildest dreams did I expect this!
In the box, I found a CHEESECAKE!!! :) It's a Junior's cheesecake!!! It has chocolate ganache, original NY cheesecake, raspberry swirl, and cherry crumb.
I was so touched and excited, I admit it, I cried. :) Hey, I'm pregnant. It's Junior's Cheesecake. I think I was entitled to cry. :)
It is in my fridge as I type this. I've already had people willing to take it off my hands. They claim Tiny and I don't need the calories! Hrmph! lol
My problem at this point, where do I start? The owner of Junior's said his favorite of all their flavors (of which they have many) is the original. And I must admit that "plain" cheesecake is usually my favorite as well. However, they are all calling out to me.
In fact, I think I may have cheesecake for dinner. :)
23 down ~ 112 to go
Tiny's 24 week ultrasound pictures!
4:48:00 PM Posted In 24 weeks , Pictures , Pregnancy , Ultrasound Edit This 3 Comments »In this picture, we have Tiny doing what Tiny does best...sleeping and thumb sucking! :)
Although you can see more of Tiny's profile and little fist in the mouth! (Very cool.) The white line running down Tiny's profile are the bones in the face. You can also see the little hand and arm bent at the elbow. Even in utero this kid is CUTE! :)
In this picture, we have Tiny's tiny little face. It doesn't look quite like the alien look Tiny was sporting a few ultrasounds ago. :)
The oval under the word "face" is Tiny's right eye. The gray part just above that oval is Tiny's forehead. The black spot below and to the right of Tiny's left eye. The short white line in the middle are the bones in Tiny's nose. There's a small grayish-black line just under the nose, that's Tiny's slightly open mouth. I think the two circles under the chin are Tiny's elbows because during the ultrasound Tiny had the left hand and arm tucked under the head. And the right hand and arm were tucked similarly on the opposite side of the face. (Think the famous "Home Alone" scream, without the open screaming mouth. ;) lol)
And last but not least, Tiny's last 24 week ultrasound picture!
In this one Tiny is just sort of hanging out. I believe this was taken either just before or just after I was kicked really hard for allowing the "evil Barb" to poke at us again. ;) lol
On the left side of the picture, see that circle with the dot in the middle? That's Tiny's knee, like I said I was either getting kicked or had just been kicked. lol The odd shape to the right of the word "body" is Tiny's hand/arm, I'm not sure from which side. And then you have quite possibly the most beautiful profile shot I've ever seen in a 2D ultrasound. The white line just under the word "face" are the bones in Tiny's forehead. Then moving to the left, you've got Tiny's nose. (So cute.) Then Tiny's top lip. And Tiny's bottom lip. Go on, tell me my child isn't adorable! :)
Barb also put Tiny's estimated weight on this picture. Based on all the measurements, Tiny appears to be about 1 lb 7 oz, which is in the 55% for the gestational age. :)
23 weeks Belly Pictures
4:30:00 PM Posted In 23 weeks , Belly Pictures , Pictures , Pregnancy Edit This 2 Comments »And here we are from the side.
Sorry about the cheesey grin but it's gets difficult smiling for all these belly pictures. :) lol Plus Rob inevitablly does something to make me laugh, which then makes it just that much harder for me to smile a normal smile.
You can't really see the hospital band in this shot but know that it's there. lol
On a side note, my hair is getting really long! As seems to be my way, I had my Auntie Sharon perm my hair a few months before I found out I was pregnant with Tiny. (The same thing happened with Elliott Richard.) My wonderful, talented Auntie does all of my hair cuts and I was hoping to snag her on one of her precious days off over the weekend. Then I ended up on bed rest and now I can't go over there. :(
Looks like I'm doomed to have split ends and hair in desperate need of a trim for the rest of my pregnancy. *sigh* ;)
22 week Belly Pictures
4:23:00 PM Posted In 22 weeks , Belly Pictures , Pictures , Pregnancy Edit This 1 Comment »Tiny's 20 week ultrasound pictures!
3:20:00 PM Posted In 20 weeks , Bed Rest , Pictures , Pregnancy , Ultrasound Edit This 2 Comments »On the right of the screen there's the faint outline of a long oval - that's Tiny's leg. The long thin gray oval like shape at the top is Tiny's arm. The hand is the bend oval on the left end of the longer oval. There's a white line towards the bottom, that's Tiny's spine. The black circle above the spine is a kidney or maybe the bladder. It's black because it full of amniotic fluid Tiny has swallowed. If you look you can see where Tiny's profile would be on the big gray circle on the left end. And on top of his profile is a finger. Thumb sucking is hard to do in the dark. ;)
And now, after some stretching and kicking to try and get the "evil Barb" to leave me alone, Tiny has given up. Back to the thumb sucking and a nap. In this picture you can see Tiny's profile. See the top lip just above Tiny's thumb? You can even see a few of Tiny's fingers because the hand is open rather than a fist above the face. Then the line going off the hand to the right is Tiny's arm and elbow.
I *heart* surprises! Part 2
3:05:00 PM Posted In 24 weeks , Bed Rest , Fun , Pictures , Special People Edit This 1 Comment »Cupcakes, yum! Take 2
3:01:00 PM Posted In 24 weeks , Bed Rest , Pictures Edit This 0 Comments »The New and Improved Bed Rest Haven
2:41:00 PM Posted In 24 weeks , Bed Rest , Pictures , Pregnancy Edit This 0 Comments »Prayers are needed!!!
1:56:00 PM Posted In God/Prayer , Special People Edit This 0 Comments »Nathan has posted to his blog that Tricia may be undergoing her double lung transplant today!!!! The transplant team have a set of lungs in TX that may be a match. Pray! Pray! Pray! Pray that this isn't a "dry run" (aka false alarm). Pray that Tricia comes through the surgery with flying colors. Pray for the donor. Pray for the donor's family during this difficult time. Pray! Pray! Pray! Today is also Nathan's birthday - what a gift! :)
I just IMed Julie. She is at an impromptu OB visit. I don't know what is going on but please pray for her and Baby O. Pray that everything is as it should be. Pray that Julie and Baby O are okay. Pray! Pray! Pray!
Borrowing an idea from Julie
8:54:00 AM Posted In 24 weeks , Bed Rest , Pregnancy Edit This 2 Comments »I was checking out her blog, something I do everyday. And at the bottom of her page she has the running stats on Baby O's pregnancy. I've decided to borrow this wonderful idea. Please see the bottom of the blog if you ever need a reminder of where we stand at any given point. :)
A message for my Grammie/Auntie Sharon
8:45:00 AM Posted In 24 weeks , Bed Rest , Family/Friends Edit This 0 Comments »Love you guys!
My 3 Things
8:14:00 AM Posted In 24 weeks , Bed Rest , Fun , Life Edit This 4 Comments »These are things that I would change only if I knew that they would not greatly effect the course of my life after that point. If it is an all or nothing change, meaning I make the changes and my life is completely different, than I pass and I'll leave things as they are. If, however, I can change these things and simply have them erased...then where do I sign. Without further ado, here are...
1) My first "marriage" ~ I would simply follow my instincts, rather than ignore them, and not say "I do". Had I done this then, there's a very real chance I would not be $25-50,000 in debt for legal fees incurred during my divorce and custody battle.
2) I would take the job offer made to me in November 1999. I was working at Blockbuster Video. My assistant manager offered me a position as an Assistant Manager in her new store in Alliance. She also offered to allow me to stay rent free with her and her husband (as long as I was working and in school) so that I could attend Mount Union College (one of my top 3 college choices out of high school that I couldn't afford tuition and room & board for) without commuting or having to try and pay room & board. There's no telling how different my life would be had I taken this offer.
3) I would have taken more time to enjoy the little things in life. I also would have taken more time to journal my experiences in life. I'm told that I'm somewhat of a "statistical anomaly" and I think it would come in handy for my kids to know about that part of my life when they are old enough. I also would have taken more time to journal during Gavin's pregnancy and infancy. Things were so crazy and chaotic that I didn't do these things as much as I would have liked. Now I wish I had.
Bed Rest ~ Day 23 WE MADE IT!!!
8:03:00 AM Posted In 24 weeks , Announcement , Bed Rest , Pregnancy Edit This 2 Comments »We are officially 24 weeks!!!!!
We did it! We did it! We did it!
Since I can't dance from bed, here's a clip from "Perfect Strangers" of Balki and Larry doing the dance of joy for me! :)
23 down ~ 112 to go
Random Television Based Ponderings
9:41:00 PM Posted In 23 weeks , Bed Rest , Television Edit This 2 Comments »The "say what" factor is the level of confusion felt during any episode (with shows like Flavor of Love it typically happens in most, if not all episodes) where you are left sitting there saying "say what" or some variation thereof.
Paradise Hotel/Island Whatever ~ Why?! Again, much like with Flavor of Love, why do this? What part of this show is a good idea? Who wakes up as a couple and says, "I know what our struggling relationship needs...infidelity!" Honestly, there are better ways to try and save your relationship and prove your love than to test your temptation on an island, in a hotel, on a boat (who cares where they are) and pray that you don't sleep with someone or your significant other doesn't cheat first.
Moment of Truth ~ Now I admit, I watch this show from time to time. But even for my strong stomach for most this television, it's a bit much. Why do people do this to themselves? Is money really that important?! I've lost count of how many marriages, families, friendships, careers have been ruined in the name of the "all mighty dollar". Why?!
CSI (and all similar shows) ~ First, I love most of these shows. Second, I understand they are supposed to be professional. I also understand that the average viewer has no real world knowledge of the criminal investigation field. However, does it strike anyone else as odd that they need to explain the obvious to their co-workers? Or what about the fact that lab work is rarely ever done without the beeps, bops and boops accompanied with flashing lights and screen changes? Yes, they make for "more entertaining television" but do they annoy anyone else besides me?
Franklin ~ I'm confused. If we as humans, eat the flesh of another human that makes us cannibals. Rightfully so. So if a turtle eats other small woodland animals (that turtles wouldn't eat in real life) does that make him a variation of a cannibal? What about pets? It just seems wrong to me that a turtle has a gold fish as a pet. And his friend Beaver has a hamster as her pet. Oh and speaking of Beaver, why are Franklin and his family (parents and sister) the only ones with actual names. Every one's name is simply a variation of their species. ie Bear, Beaver, Fox, Goose etc. Don't they deserve names as well? And if Franklin is a turtle (which he is) and he wears his shell (which he does) why does he need clothing?
These are just some random things I've been pondering about in regards to telelvision shows. :)
T-Minus 2 hours 21 minutes
9:38:00 PM Posted In 23 weeks , Announcement , Bed Rest , Pregnancy Edit This 2 Comments »Y'all know what that means don't you?
Hot off the presses! Check it out!
4:16:00 PM Posted In 23 weeks , Bed Rest , Blogs of Note , Pregnancy Edit This 1 Comment »A Day in the Life ~ Jen is a stay-at-home of two, a 2 yr old daughter and 10 mo old son. She found my blog through random circumstances (the best kind) and then I found her's through her Blogger Profile. It's new. It's fresh. It's honest. I like it. :)
Monday, March 17, 2008
Purpose of this blog
I'm starting this blog as a little experiment. I want to see how many people I can meet through this new world of blogging and whether or not you can make friendships this way. It is going to be interesting to say the least. The worst case scenario is that nobody reads this blog or wants to get to know me. If that happens then I still have a wonderful "memory book" of what was happening in my life. Or, I good make one new friend. And lets face it, I think most of us could use a new friend.
Posted by Jen at 2:24 PM
Journeys of a Peaceful Little Flower ~ I know Tressa in real life. She is a beautiful, peaceful soul. Her blog title is very fitting. She just started her blog so let's show her some love! :)
IntroductionsI Hope You Dance ~ Raelyn is a stay-at-home mom to two little girls. It is an account of her life, especialy right now as she is going through a pretty difficult time medically. So she could use all of the prayers and positive thoughts you have to spare.
Hi everyone! This is just a nice little post to introduce myself and tell you all what you can expect in the upcomping blogs.My name's Tressa, and I'm a counselor working in a charter school for kids with Autism and other special needs. I've been living in Canton, OH for a year now, but I grew up in New Castle, PA. I went to Youngstown State University for my bachelor's degree and my master's degree. I love Canton, and I'm glad to have found someplace that feels like home.Hmm...some other things about me. I study martial arts (Karate, and I've done a bit of Jiu Jitsu too), I love to bake, I write children's picture stories (I'm trying to get published soon), I'm a cat person (although I don't have any at the moment), I'm vegan (for anyone who doesn't know, that means I don't eat anything that comes from an animal), and I'm wild about singing, dancing, and musicals. I'm very spiritually strong, and my religious/spiritual path has been very arduous at times.Well I guess that's good for an intro. I'll primarily use this blog to vent my feelings, share my opinions about those issues which I feel strongly about, and generally keep people up to date on the ins and outs of my life. Leave comments for me! I love to know what others think about my thoughts!
Posted by Tressa at 4:02 PM 2 comments
Labels: background, interests, intro
Raelyn - 32 year old Mom to the best girls ever. I am currently dealing with Trophoblastic Disease and will be starting Chemo 2/4. But I have faith in God and know that with him all things are possible.And so now, as always, I say: Go! Read! Comment! Pray! Share the love, folks! Share the love! :)
Bed Rest ~ Day 22 Ouch!
3:25:00 PM Posted In 23 weeks , Bed Rest , Dr Appt , Medical/Health , Pregnancy Edit This 6 Comments »Here are the stats:
Weight: 176 lb.
BP: 90/60
Tiny's Heartrate: 142 bpm
Tiny's Weight: 1 lb 7 oz (Yay!)
Fundal Height: 24 cm
Our first appointment was at 11:00am for the ultrasound. I thought it was going to be a quick in and out just to check my cervix. Nope! :) She did check that but she also did a full biophysical profile (took all the measurements and whatnot). My cervix is actually longer (4.2 cm now, 4 cm two weeks ago) today that it was at the last ultrasound, which means the bed rest is working and the contractions are not! :) We have three new pictures of Tiny to show off. And boy are they cute! (Not that I'm biased or anything.) Tiny is measuring in the 55% for the gestational age. And some measurements were even coming up 2 weeks ahead of schedule. Barb said Tiny is 1 lb. and 7 oz which is a good weight for this point in the pregnancy. (Remember: big baby = fewer issues if the NICU is needed.) She read in my chart that we were worried last week about the posibility of leaking fluid so she took a few minutes to check that too. I have plenty! (Yay!)
After the ultrasound we saw Dr. D. Rob asked him about the home contraction monitoring that Lisa keeps mentioning. Dr. D said that in his experience it isn't very accurate at 24 weeks, it can still be pretty touch and go. He said if I make it another 2-4 weeks we'll consider it then. (sigh) He said so far things are looking really good because the contractions aren't causing any cervical changes. He's still concerned about how long this will hold out for so he ordered the Celestone (steroid) injections to help with Tiny's lung growth. Let me tell you (in case you don't know from experience) those suckers HURT!!!!!! Granted, I don't like shots but ask Rob it actually takes a lot from a shot to make me cry. This one, made me cry. Rob rewarded me with a double cheeseburger, small fry and large sweet tea from McDonald's afterwards though. :) The "best part" is that I get to go back to Dr. D's office tomorrow for the second dose. Which means 4 shots today (1 - 17P, 2 - Heparin and 1 - Celestone) and 3 tomorrow (2 - Heparin and 1 - Celestone). Other than that, we go back next week for another checkup and repeat fFN test. Then we will go every two weeks for a while before the weekly appointments and biophysical profiles start.
So far, so good. Tiny is moving up a storm. Barb was able to get some really good pictures of the heart that she couldn't get two weeks ago because of Tiny's position. Dr. D is encouraged by my lack of change so far. And other than a migraine and two sore hips, I'm actually feeling pretty good. I just took my migraine meds so hopefully they will kick in soon and I'll just have two sore hips to contend with. ;) lol
22 down ~ 113 to go
3 weeks down ~ 12 weeks to go
Success!!!!
8:48:00 AM Posted In 2 years , Announcement , Elliott Richard , Special People Edit This 0 Comments »Jen managed to find a copy of "Too Many Bunnies"!!!!! Yay! Jen...
glitter-graphics.com
Bed Rest ~ Day 22 5 down 13 to go! (a massive medical rundown)
8:41:00 AM Posted In 2 years , 23 weeks , Bed Rest , Elliott Richard , Medical/Health , Pregnancy Edit This 2 Comments »Here are the stats from my trip to L&D the other night. (See this post for details.)
Weight: 174 lb.
BP: 111/66
Pulse: 81 bpm
Tiny's Heartrate: 133 bpm
Elliott Richard had his 2 year checkup yesterday morning at 11:00am. Rob had to take him while I stayed at home. :( He said it went really well. No shots - he's due for Hep A but they decided to hold off for another 6 months to a year. They lab pricked his finger to check his lead levels. We haven't heard back yet, which could be good news. But I don't know how long it takes to get those results back. Our house is apparently in a "high risk" zip code. Nevermind the fact that our house is over 100 years old. Both of which put the boys at an increased risk for lead posioning. No news is good news, so hopefully we won't hear from them. :) They discussed whether Autism is a concern for Elliott Richard (one of our biggest worries). Rob said they talked about it and filled out a questionairre. In the end Dr. H (Elliott's pediatrican) said that Elliott doesn't show any of the warning signs for Autism that would cause him concern. (Yay!) Overall, a good visit.
Best of all, my tiny little Twitterbug is becoming quite the chunky monkey! He's always been in the single digits of the growth chart but no one was worried because we was consistant. He's now in the 25% for both weight and 40% for length! WOO WHOO! Here are his stats:
Weight: 26 lb
Length: 33.7 in
Now for me again. :) Lisa just left. Yup, you read that right. LISA IS BACK! (Yay!) Now on to the good stuff. The appointment went well. Tiny was quiet the whole time she was hear and now that's she left Tiny is, of course, moving and grooving all over the place. lol The shot was slightly painful but in the correct place, which is much more important. :) Here are the stats:
BP: 110/63
Tiny's Heartrate: 142 bpm
And that's all for the medical rundown for now. I have an ultrasound (yay!) and appointment with Dr. D at 11:00am and 11:30am respectively. I'll be sure to post the rundown when I get home. And hopefully I'll be able to post pictures from my last ultrasound and today's. Along with the pictures I promised you guys the other day. :)
22 down ~ 113 to go
"Too Many Bunnies"
11:23:00 PM Posted In 2 years , 23 weeks , Elliott Richard , Special People Edit This 1 Comment »The book I'm looking for is about Benny the Bunny. Benny has lots of siblings and he gets upset because they won't allow him to play, so he goes looking for a new family. Eventually he returns home and all is right with the world.
Elliott Richard just loves this book. I think the rhythm of the story is soothing. But I think he likes the voices I make for the different friends Benny makes during his travels. :) lol
I'll look for our damaged copy to see who wrote it tomorrow morning. I know that it's an older book so maybe they've stopped printing it. :(
Thanks again for all the help though! :)
Bad little monkey...
9:19:00 PM Posted In 2 years , 23 weeks , Bed Rest , Elliott Richard , Life , Pregnancy Edit This 2 Comments »In terms of my preterm labor...it's been an okay day. I've had more contractions today than I've had the last few days. My siatic nerve is all bent out of shape today, which HURTS. I've had a migraine off and on...mostly off.
I'm just kind of...blech. I'm frustrated because Elliott Richard loves this book entitled "Too Many Bunnies". I can't remember who wrote it. We read it, to death. Literally. It's fallen apart and we've lost some of the pages. I figured I have a few dollars in a giftcard on Amazon.com and I would replace it. But NO! I can't. They don't have it. That's right, I said it. AMAZON.COM DOES NOT HAVE A BOOK I NEED/WANT! ARGH! I even googled it...NOTHING. I just want to replace his favorite book. I want to be able to read it to him again because the older he gets, the more he enjoys our story time. But I can't because I can't find it. :(
Bed Rest ~ Day 21
11:50:00 AM Posted In 23 weeks , Bed Rest , Daddy/Rob , Life , Pregnancy Edit This 4 Comments »I wish there were something I could do for him. I'm sorry that he had to let his card go. I know that pain when you feel that a piece of you has been wrenched away and there was nothing you could do to stop it. Only I know it in a different way. I wish he didn't have to know that pain. It changes you, in the very core of who you are. I wish he didn't have the weight of our entire world on his shoulders. I wish there was something I could do to make it all better. He is my hero, especially right now. I know he hates to give me these injections but without him I would have to give them to myself. (I cannot describe to you the fear and panic just thinking about that brings to mind.) Even when he does the simple things in life (the dishes , the laundry, bathing Elliott Richard and putting him to bed), he is my hero. I try and tell him this but I don't think he believes me. He is though, he's my hero and without him I would be lost. Plain and simple.
Cracking....
6:48:00 PM Posted In Stressed/Exhausted , Vent Edit This 3 Comments »Lizze has a new full time job and that is keeping Tiny in the oven as long as possible.... She was the glue that held us all together. Now that she is effectivly out of the picture for the next few monthes I have some big shoes to fill.
I am chasing after Elliott Richard all day long. He is into absolutely everything.. Lizze keeps trying to help which stresses me out even more because she shouldn't be. Gavin is, well, Gavin. In a perfect world Gavin alone would be overwhelming. I am trying to run a business so we can financially survive and stay on top of everything else. Business could be going better. We are in the time of year where the house's are just starting to go up again...Things will get busier this summer but I will have to sub all the punch out work out because Lizze will need me at home.
I am trying to focus my limited efforts on the computer repair and video processing side of our business because I can do that out of my home office. My Microsoft projects should start becoming available again in the coming months. I have been working for them for almost 10 years now and really enjoy it. My favorite is the Microsoft Office Accounting phase. I am really good at that and have recieved many awards for my work on that project. ***links removed to protect the family from crazies*** But over the past few years I haven't had as much time to dedicate to them as I would have liked. I have a feeling time will become harder to come by in the near future....
I just lost my medic card today. It expired on March 29, 2008. I have tried not to think about that because it is really depressing. Working as a medic was the only thing I had left from my career as a fire/medic. For those new here, I had an accident about 7 years ago while on a call. I destroyed my back and found out that I have degenerative disc through out my spine (not a good thing). I have been in constant pain since the accident. I have become used to it so I don't always notice it. However, it is always there, slowly eating away at me. I still managed to work as a medic for a few years after to take care of Lizze and Gavin but with everything we had going on it became to much. Next to being a husband and father it was the best job I'd ever had.
I have continued to keep my card up to date hoping maybe someday I would be able to use it but it is to expensive to renew this time around. I just can't justify spending $500 on something I may never use again.... I am really sad because it feels like a part of me has died...
I am really struggling to hold everything together...I can't remember anything anymore. The worst part of my day is having to give Lizze her injections. She is terrifed of needles and here I am injecting her twice a day. Her arms are all bruised up and I hate the fact that I did that to her. I know it's important but it doesn't make it any easier. She starts and ends her day with an injection. I really admire her strength and courage because she faces one of her biggest fears twice a day... She even tries to make me feel better about giving them to her.. Amazing, isn't she...
Elliott has his 2 year check up in the morning and guess what, he is getting several shots plus a finger prick to test for lead. I am not looking forward to that.
Gavin is going to Lizze's mother's for awhile. Between our parents they are going to carry the Gavin load for some time. This break is so crucial because the stress in the house is simply unbelievable. It's not in Gavin's best intrest to be here right now, nor is it in ours to have him here. So a big thanks go out to our parents.
I am done for now becasue my head is pounding and Lizze is due for her heprin injection at 8:00 pm. I have to get Elliott down and then I have dishes and laundry to do...
Please continue to pray for Lizze that she can make it through the next 115 days with as few complications and health risks as possible. Also for Tiny, Gavin and Elliott...
Sorry, if this didn't make sense but my head hurts and it pretty much made sense to me as I was typing. I am not meaning to complain about my responsiblity I just sometimes get ovrwhelmed like I seem to be today......Venting seems to help.....
Thanks 4 listening......
11:02:00 AM Edit This 0 Comments »
Bed Rest ~ Day 20 Recap of Day 19
7:48:00 AM Posted In 23 weeks , Bed Rest , Hospital , Pregnancy Edit This 1 Comment »Everything is okay. About as good as can be expected at this point. I didn't sleep very well last night - combination of crazy dreams (that I can hardly remember and don't have a clue as to how I should describe them) and Elliott Richard not sleeping well because he kept kicking his blankets off. Now we're just snuggling and watching "The Upside Down Show". (I hate this show.)
Last night went pretty well. We still don't know what's going on but I was treated LOADS better this time around. The longest wait we had (besides lab work being processed) was for Transport to come and pick me up. The Transport chick was a little...odd. I think she was trying to lighten the mood and make me feel more comfortable with stories of women who had waited in the ER waiting area so long they were "clamping their legs together to keep the baby in". Not something a pregnant mother in preterm labor, with a history of preterm labor, really wants to hear but oh well. lol
The nurse whose tag line last week was "We'll be with you in a few minutes" was working again last night. She didn't help us. She actually didn't even look at us beyond the initial glance. I was registered and weighed. Once in my room, I had no sooner gotten in the gown and situated in bed before my nurse came in and introduced her self. She finished the whole registration process and hooked me up to the monitors and left. Only to return within five minutes with the doctor! *shock* Both my nurse and my resident were really, really nice. He checked me (still high and firm) and ordered some tests (blood work and all that good fun stuff). Rob and I hung out (hence the crappy picture of me in the previous post) for a while. The nurse brought me some ginger ale to drink (yum) and even said Rob could get me food (double yum)! :) So he went and got me one of the hamburgers the hospital makes. (I don't know why but I love these hamburgers!) Not long after my delicious hamburger the doctor came in and said he felt it was just "normal pregnancy stretching" and that most of my tests were normal. One of the tests was being held up in the lab and they didn't want to make me wait because it could take quite a while for it to come back. They took Rob's cell phone number and were going to call with the results no matter what they were. But Rob told the nurse we could go the "no news is good news" route, meaning she would only call if there was something wrong. (We haven't heard anything so all must be right with the world.)
I don't agree with that because by now I know what "normal pregnancy stretching" feels like. These cramps were directly tied to the backache. I only had the backache with the cramps...never one without the other. Granted they weren't timable or anything but they were regular and painful. All that matters though is that the cramps and backache weren't accomplishing anything in terms of dilation and whatnot. So I'll just stay down (surprise surprise) and talk to Dr. D about it at my appointment this week.
Once we were home, Rob set up my new Bed Rest Haven. And then Dad G brought Elliott Richard home with FOOD! (Yum) Once the living room was all rearranged, Elliott Richard was in bed and our tummies were full...I was too pooped to post. lol
I've got pictures to post but I need to upload them first. So they're coming...just give me a few. :)
20 down ~ 115 to go
That's My Boy!!!!!!!!!
12:58:00 PM Posted In 2 years , Daddy/Rob , Elliott Richard Edit This 0 Comments »Bed Rest ~ Day 19
11:46:00 AM Posted In 23 weeks , Bed Rest , Pregnancy Edit This 1 Comment »I'm now on my couch. Trying to find a scrapbook so I can make a scrapbook of Gavin's ultrasound pictures and belly shots. The few belly shots I have left anyway. Thanks to certain people most of them were lost. I'm also having a lot of cramping with a dull low backache that comes and goes, which isn't good. The plan of attack is to lay on my left side, drink nauseating amounts of water and eat lunch. Hopefully by then this will have passed and I won't need to call in. However, if I need to call in they are going to make me go in at least I won't starve while I'm there.
I'll keep you updated and with any luck I'll be able to post the blog I had planned. ;)
19 down ~ 116 to go
I made this for Elliott's 1st Birthday......Just Found It...Again.
5:42:00 PM Posted In 2 years , Daddy/Rob , Elliott Richard , Movies Edit This 3 Comments »***While I appreciate the fact that everyone finds me so creative and this slideshow so moving (it is), I can't take any of the credit. I grew the subject (Elliott Richard) but Rob did the whole slideshow himself.***
I *heart* surprises!
3:19:00 PM Posted In 23 weeks , Bed Rest , Fun , Pregnancy Edit This 1 Comment »I made some popcorn last night but couldn't stomach it, so I spread it around outside this morning for the squirrels. Now I've got squirrels, robins and all sorts of other birds as visitors. :)
Then I'm sitting here, working on a cross stitch project when UPS pulls up. I didn't think anything of it at first because my neighbors often get packages but then he came to my house! Rob went and got the package for me because we were thinking it was for him. The only packages I ever get are when I beta test something and I'm not involved in any betas right now.
Turns out the package was for me! :) Inside was a pregnancy journal!
Well I'm off to start my new journal. :)
Bed Rest ~ Day 18 My Lil' Contry Bumpkin
10:36:00 AM Posted In 2 years , 23 weeks , Bed Rest , Elliott Richard , Gavin , Pregnancy Edit This 5 Comments »But I digress. My children have always shown a love for music from the get-go. I give birth to "dancers". ;) lol
Gavin's favorite song was Christina Aguilera's "Genie in a Bottle". His favorite group was Dixie Chicks. If he wasn't very active, I could play Dixie Chicks and be rewarded with some "dancing".
Elliott Richard's favorite song was Christina Aguilera's "Can't Hold Us Down". (Notice a pattern here? lol) But really any Christina Aguilera song would do. He wasn't picky.
I think their love of Christina is what laid the ground work for them to have similar music tastes with Rob. Rob likes rock, 80's...basically all things with a strong beat and then country. I'm the opposite. I love country. I would listen to country and bluegrass and jazz all day. (Sadly I am alone in my love of jazz.) I like select songs from other genres but I am a country girl at heart, through and through. I even have a country accent on certain words and phrases. (frog = frawg etc)
Well it would seem that Tiny is a little more like me than the rest. ('Bout time!) I played Christina for him this morning fully expecting the pattern to continue. Nope. Tiny was quiet. There were a few bomp, bomp, bomps but no "dancing". Next I tried Rascal Flatts. (I heart Rascal Flatts!) Ladies and gents, we've got dancing! HAHA I'm no longer the only "country bumpkin" in the family! :)
Bed Rest ~ Day 18 Introductions
9:05:00 AM Posted In 23 weeks , Bed Rest , Dreams , Family/Friends , Pregnancy Edit This 2 Comments »I dreamt of my Granny last night. She died on May 11, 2002. That's the day that I changed forever. But that's another post. I used to dream of her often after she died. As the years have passed I haven't had as my visits from her. This may sound crazy, or maybe it won't, either way it's what I believe so :p on you! lol I believe that my Granny visits me in my dreams. I've had visits from other family members as well. But my Granny is my only steady visitor.
I had dreams of my Grandpa C, my Mom's dad, throughout my entire pregnancy with Gavin. This is significant (to me at least) for a few reasons. First, I had never dreamt of him before that time and I have yet to dream of him since Gavin's birth. Second, Gavin was born the day before my Grandpa C's birthday. Third, I was working at Staples while pregnant with Gavin and I had a customer come in one day who could have been Grandpa C's clone. No joke. I looked as if someone had plucked this man straight out of a picture I've seen of my Grandpa. Every where I turned during that pregnancy, my Grandpa C was there. Again, this has not happened since.
The last visit from my Granny I remember vividly was just after Elliott Richard was born. I dreamt the family had a big cookout/reunion (something her side of the family has every summer for the 4th). At that reunion I was able to introduce her to the great-grandson she had never had the chance to meet (on Earth anyway). She was able to hold him and kiss him. And I felt better having had that opportunity. (Writing this is causing me to get all teary eyed.)
My Granny was a huge influence on my life growing up. I was convinced that the sun rose and set with her. She was only about 5 feet tall but her personality was so much larger! She loved life. She was creative and compassionate. I don't think she ever missed one of my swim meets or gymnastics meets or major life events, even if they were hours away. I was (and still am to this day) her only grand-daughter.
I am struggling to find words that adequately describe her and the emotions tied to her. All I can say is when she died, I was forever changed. There was honestly a moment when I thought the pain of her death was going to drown me. Someday I still feel like that.
So when I am given the opportunity to "spent some time with her" via my dreams...that marks the beginning of a good morning.
Last night I dreamt of her again. She picked me up and took me shopping for things I would need and want while on bed rest. She bought me gobs of snacks, some slippers that looked like tennis shoes (I used to have some of these but I wore them out.) and a bunch of puzzles and doo-dads to help keep me busy. Then she took my mom and I out to lunch. We all sat around the table and chatted up a storm while we ate. When we were finished Tiny was going crazy, just moving and grooving like mad. Which gave me the opportunity to have my Granny feel the movement. I woke up feeling much better and at peace with everything. The funk was gone.
I miss my Granny, every day. But I miss her most during major life moments such as these.
18 down ~ 117 to go
God, Autism, Anger...Oh My!
8:27:00 PM Posted In 23 weeks , Asperger's/Autism , Bed Rest , Gavin , God/Prayer , Life Edit This 0 Comments »03/27/08 10:54:12
how to stop being angry at God for gaving me an autistic child (Google)
Now for me, this brings about a mix of thoughts and feelings.
Am I angry with God because Gavin is Autistic? At times, yes I am. I wonder why our little boy was taken from us. Why he was so perfect and developmentally on target (for the most part) and then *BAM* he was gone. I wonder why God thinks I can handle so darn much. I guess maybe I question God more than I'm angry with him. Although I don't know that questioning him is any better.
Do I habor angry or hatred toward God for the challenges he's place before me? No. Again, it would be nice if he didn't have quite so much faith in me and my abilities to handle stuff. But I'm not angry for the challenges I've endured. Those challenges have made me who I am and while I may not always be happy with who I've become; for the most part I'm pretty comfortable with who I've become.
If given the chance to change it all, would I? Depends. There are certain things that I did out of ignorance (signing my divorce decree without asking more questions, blindly trusting attorneys because I thought they knew better etc) that I would change if given the chance. There are things that I did and I knew in my gut at that moment were the wrong choices for me to make (saying "I do" to Nick being a HUGE one). Those I would change if I could. But to change it all? If it has to be an all or nothing choice, I choose to leave it alone. There's no way for me to know what I would loose by changing things. That's not a risk I'm willing to take.
Now, please understand that simply because I am not angry with God because Gavin is gone does not in any way shape or form mean others should not be angry. Anger is part of the healing process. I've been angry. I'll be angry again, I'm sure. Everyone is entitled to their own feelings. Everyone has to deal with this situation and process in their own way. Whatever that may be.
For the most part, I'm not angry with him for Gavin's Autism because I don't know what he has in store for us later. I don't know why he placed this angel in our lives. But I'll struggle and muddle my way through until we figure it out.
Bed Rest ~ Day 17 Check it out!
3:53:00 PM Posted In 23 weeks , Bed Rest , Blogs of Note Edit This 3 Comments »Well ladies and gents it's that time again. I've found some new blogs that I just love love love! So that means I feel a desire to introduce you. I urge you (very strongly) to click the links and check them out! :) Without further ado...
London McCalling ~ Shannon, Matt (her dh), Waverly (I just adore this name!) and Oliver are all from the US but have relocated to London, England when Matt was offered a job (possibly transferred). What began as a blog about their new lives in London has also become a blog about the family's struggle to find a diagnosis for Waverly and to ultimately cope with the diagnosis and how it effects them all as a family.
Friday, March 21, 2008
We Have A Diagnosis
Waverly has mucopolysaccharidoses (MPS), specifically it is known as MPS III or Sanfilippo Syndrome. Even though we have been waiting anxiously for a diagnosis, nothing could have prepared us for this devastating news. I am not emotionally or physically capable of writing more at the moment. Here is a link for further information: http://www.nlm.nih.gov/medlineplus/ency/article/001210.htm
I went back yesterday and read her blog from beginning to end. Her family is beautiful and I feel for her during her struggle to find and cope with a diagnosis for Waverly because we've been in a similar situation with Gavin for the past 7 years.
What the heck was I thinking?! ~ This is Nikky's blog. Nikky is married to Chris, a military officer currently stationed in Texas (I have a huge soft spot for those serving in the military but that's another blog.), and currently pregnant with their first child.
February 06, 2008
Transitioning from Myspace to the Open Waters of the Net
at 11:57:00 AM
Blogging on Myspace is easy. No one reads them. Ever. Well that is unless you have friends who seem to hang on every written word you write. What the heck could I possibly say that is that freaking important?! Nothing that I know of!!
Mostly I have ranted about my trials and tribulations of infertility, the continuing shifting waters called community college, my periodic rants about people I find incredibly stupid (like my recent rant about a cult-like "church" from Kansas). Although I have raved about incredibly brave people (men and women serving in the military) and an outstanding group of people who I recently had the privilege of seeing The Patriot Guard Riders. I am not going to say that some of my ranting (and raving too) has not been without some controversy. (I know there are at least 3 people who will read this, roll their eyes and laugh)
So, here I go. Making my world wide web debut into blogging. No flameing (at least no real live flames) please.
Nikky is another due date buddy that I have found with God's help through blogs. Her original due date was July 25th (two days after me) but has recently been moved to July 18th (just as great a day since it happens to be MY birthday! lol). She is currently a college student working to find a balance between her roles as wife, student and mother-to-be. Her blog strikes me partly because we are "due date buddies" but also because we seem to have similar personalities. Plus she's just cool. :)
There now you have been formally introduced. So...Go! Read! Comment! :)
17 down ~ 118 to go
I got a second to update......
3:46:00 PM Posted In Daddy/Rob , Demagogues , Gavin , God/Prayer , Sick , Special People , Stressed/Exhausted Edit This 1 Comment »Today has been rough because Elliott really wants to hang out with Gavin and Gavin wants nothing to do with him most of the time. It's heart breaking because Elliott just looks so devastated by that.
We have an emergency appointment with Dr. R's nurse practitioner in the morning. We have to do something to help Gavin find his way out of this. Hopefully we can adjust some meds and that's all it will take. School starts back up on Monday and at the rate he is going it will be a complete disaster.....
Gavin is really upset now because his Grandma M. refuses to see him. He hasn't seen her or his father (and I use that term loosely) in almost 9 months and he really misses them. We used to make excuses for why they did the things they did. We don't cover for them anymore. We tell Gavin that "Grandma M. and his daddy are both adults and we cannot make them do anything". We tell him that "he has done nothing wrong but sometimes grown-ups can do things that make us sad even though they loves us".
We know he is better off never seeing them again. However, it's important to him and therefore important to us. The contact will always need to be supervised in a controlled environment because neither one can be trusted and Gavin needs to feel safe. But outside of that we completely support Gavin's desire to see them.
She is currently refusing to see him on "principle". Real world translation: "She will only see on her terms because supervised visits are benegth her". His father has simply disappeared. That for me is very sad. I can honestly say if I were in her shoes I would do whatever it takes to see my kids or grand kids. I would cross ocean's, climb mountains and certianly drive 2 hours even if I could only see them a few minutes...YOU DO WHATEVER IT TAKES TO SEE YOUR KIDS..I just don't understand people.......
Well that is my rant for now. I had to stop typing for a little bit because Gavin was going after Elliott. Everything is ok. Gavin was freaking out because Elliott brushed against his hair....I am so tired... I'm sure Lizze will be posting later......
Thanks for listening.......
Today is a day of processing...
2:21:00 PM Posted In 23 weeks , Bed Rest , Pregnancy Edit This 1 Comment »I am 23 weeks and 1 day pregnant. My pregnancy is considered a "high risk" pregnancy. That means the risk to myself and Tiny is greater than found in a "typical" pregnancy. I am currently considered in preterm labor. I am on medications and bed rest to try and fight the preterm labor and allow me to make it full term. It is questionable as to whether or not I will make it full term. Here are an estimates of Tiny's chances for survival:
So if I were to give birth to Tiny tomorrow there would be a 17% chance of survival. That means there is a 83% chance that Tiny will not live. Also they wouldn't use heroic measures because the age of viability is 24 weeks in the state of Ohio. Although I just did a bit of research and found that in the state of Ohio the age of viability is actually 20 weeks although this is not often the "practiced" age, meaning that technically they can sometimes assist a fetus in survival at 20 weeks but the odds are less than 1% depending on the size and weight of the fetus at birth.23 weeks ~ 17% (10% chance at life w/o any prematurity related disabilities)
24 weeks ~ 44% (40% chance at life w/o any prematurity related disabilities)
25 weeks ~ 61% (50% chance at life w/o any prematurity related disabilities)
26 weeks ~ 72% (60% chance at life w/o any prematurity related disabilities)
27 weeks ~ 72% (70% chance at life w/o any prematurity related disabilities)
28 weeks ~ 85% (80% chance at life w/o any prematurity related disabilities)
29 weeks ~ 88% (90% chance at life w/o any prematurity related disabilities)
30+ weeks ~ >94% (100% chance at life w/o any prematurity related disabilities)
There seems to be some confusion among family and friends as to the exact nature of our current situation. Allow me to try and clear that confusion up.
My pregnancy is a gift from God and a blessing, I have no doubt of this. However, my pregnancy is also in a constant state of...shall we say crisis. At any given moment the medications could stop working and my preterm labor could reach a point where it can't be stopped. At 23 weeks it's, unfortunately, all but guaranteed that Tiny will not survive. And if Tiny did survive, survival isn't any kind of promise of a quality of life.
Some feel we are being overly cautious or "making a big deal out of nothing". I assure you, that is not the case. I may be in a state of "constant vigilance" but that is simply because I am currently the only one who can speak as Tiny's advocate. No one else knows exactly what is going on physically with us. And I tend to feel that it's better to be safe than sorry. I would much rather find out I have an infection or what have you before hearing that I'm in preterm labor or my water has broken. However, I would never forgive myself if I didn't go and get these things checked out, only to discover later that I was right and we lost Tiny because I didn't speak up.
Just wanted to share this.....Some Quiet Moments....
11:06:00 PM Posted In 2 years , Daddy/Rob , Elliott Richard , Parenting , Pictures , Special People Edit This 0 Comments »We'll be with you in a few minutes...Part Deux
10:12:00 PM Posted In 23 weeks , Bed Rest , Dr Appt , Hospital , Pregnancy Edit This 3 Comments »Rob spoke with her for nearly a half an hour. Just telling her everything that had happened on Monday. She was appauled! She just kept apologizing and saying "that never should have happened". In the end she urged us to call Dr. D first thing this morning because she wasn't comfortable with the treatment I received. She said that she would take care of the nurses but "The Man-Handler" is someone else problem. She promised to call that person and have "The Man-Handler" dealt with.
Now I'm not looking to get anyone in trouble. However, "The Man-Handler" has no business treating OB patients. Especially not high risk OB patients in preterm labor. I firmly believe that her man-handling is a big part of the reason that my preterm labor has gotten so much worse over the past few days. The fact that she blantantly didn't agree with either my preterm labor diagnosis or the treatment prescribed by Dr. D just goes to show me how little experience she has as an OB. I just pray that it's a rotation and not her career path of choice.
So I posted earlier that I was waiting for a nurse to call me back from Dr. D's office. She called me back and we spoke for a while. Basically Rob and I covered the whole drama from Monday. The nurse was horrified. She took the information down and called Dr. D and spoke with Kelli, the NP (nurse practioner) and called me back. Dr. D wanted me seen today so an appointment was made with Kelli for 1:30pm.
Here are the stats:
Weight: 172 lb.
Tiny's HB: 137 bpm
We got there at 1:30pm. Saw the nurse at 1:45pm. Talked to her and she took me over to another room for a NST (non-stress test), which a test that monitors for contractions, fetal heartrate and fetal movement. It basically is to see how Tiny handles the contractions. We couldn't get Tiny to play along with the heartrate monitor so we just went with the contraction monitor without the other two.
The test began at 1:55pm. I had a contraction #1 at 2:05pm, which I felt but it wasn't nearly as bad as some of them. Nurse comes in, "Oh...look at that. Let's see what happens next." (Like I'm some sort of science experiment! lol) Then at 2:14pm I had contraction #2, again not nearly as bad as some of them. Nurse comes in sees #2 and dahses out for NP. NP and nurse return and rip strip and dash back out together. They left to call Dr. D. A new nurse comes in and takes me to an exam room saying, "We need to run some tests." (Grrreeeeat.)
They performed an fFN test and the litmus test to see if I am leaking fluid. I'm thrilled to report that BOTH tests came back NEGATIVE! (Yay!) That means I am NOT leaking fluid and that I will most likely NOT go into full-fledged labor in the next 14 days. (Woo whoo!) Then they left to call Dr. D because they wanted to discuss admitting me to the hospital. (Fantastic.) He was still at the hospital performing c-sections. This was at about 2:30pm. At 3:00pm Dr. D called but had to hang up quickly because he was needed in an emergency c-section. Finally at 4:00pm he called back said that since my fFN was negative I could come home but I had to "stay down".
So now I'm home. I still have an ultrasound scheduled for next week and appointment immediately after the ultrasound. I'm still having gobs of contractions and they made me promise I would call if things got worse or anything changed.
I feel bad about calling our family friend in Admin at the hospital but then again, I don't. If we hadn't called, we would have taken Monday at face value and not called Dr. D. And who knows what would have changed between now and next week if I'm already contracting every 10 minutes! God's timing is certainly perfect. The even crazier thing is that I don't make phone calls like that. Ask Rob. I don't complain to higher-ups. I don't "get people in trouble". I am one of those people who swallows the ill treatment and learns from it for next time. So the fact that I made that phone call in the first place...is perfect timing.



