So we went expecting that Dr. H would say we hadn't seen anything on the Apnea Monitor so we could take it off. Thereby chalking the whole nightmare up to the stomach bug and vomitting as Dr. D (not the same Dr. D as my OB) had done. Wrong. When we asked how long Emmett John would need the Apnea Monitor his response was, "As long as neccessary to figure out what's going on." Okay, makes sense.
Please don't misunderstand me here. Obviously, if the monitor is what's best for Emmett at this point then that's what we'll do. Rob and I were just under the impression that they had sent him home with the monitor more to sooth my worried mind. So when Dr. H decided to go for the long haul it just took us by surprise.
Emmett has his first (?) appointment with the Apnea Clinic on September 23rd. At that point, Dr. D will have the info downloaded off his monitor and review it. She'll then discuss the findings with Dr. H and they'll decide what our next move will be.
Up until the past few days the only alarm we've received was the "loose lead" alarm, which happens whenever one of the leads pops off. Emmett John has become very talented at getting the wires between his toes and *POP* off goes a lead. lol
There are four different lights that we need to be concerned with (not
listed in order of importance):
- The "Loose Lead" light - comes on whenever one or both of the leads has come
loose or popped off altogether.
- The "Bradycardia" light - comes on whenever Emmett John's heart rate drops
below 80 bpm.
- The "Tachycardia" light - comes on whenever his heart rate jumps above 220 bpm.
- The "Apnea" light - comes on whenever he stops breathing for 20 seconds or
more. (The monitor begins recording the episode when he stops breathing for 16 seconds but the light and alarm don't go off until 20 seconds has
Early Friday morning we were awoken by an alarm and I fully expected to see the "loose lead" light lit. Wrong. Imagine my surprise to find the "bradycardia" light lit. A few hours later, the same thing, his heart rate was dropping below 80 bpm.
Then yesterday the same thing again. Early in the morning we were awoken by the "bradycardia" light. Then while he and I was waiting in the drivethru at Walgreens for my prescriptions another alarm. Again I turned and looked expecting to see the "loose lead" light lit. This time it was the "apnea" light! Emmett John wasn't breathing! I was completely freaked out! His color was okay, from what I could see, but he wasn't picking it back up on his own. I started screaming his name and gently shaking him. (The people in the car next to me looked at me as if I was a lunatic.) And he started breathing again and the alarm shut off. I was shaking like a leaf. Emmett John simply went back to sleep as if nothing had happened. (Must be nice.)
Then last night Rob and I were talking while Emmett John slept and it happened all over again. The alarm went off. The "apnea" light went on. And again we had to gently shake him to get him to start breathing again. Luckily, we made it through the night last night without any alarms at all - "loose" or otherwise.
I had sincerely hoped to never see any of the lights lit except the "loose lead" light because there really isn't any way to avoid that one. I don't know what will happen on the 23rd now. We had hoped to go and have the info downloaded and learn that nothing had happened so everything was fine. I don't know if that will happen now.